I am grateful for the couple of pain-free days. Truly, I am. It was a great reprieve, I felt alive again. I wanted to run a mile, or dance in the rain, shout from the rooftops. When you have spent every moment in pain for years, even one day with no pain is worth celebrating – and I had three. I was hesitant to declare victory, although everything inside of me wanted to. I have been on this roller coaster long enough to know that just when I think it is coming to an end, it will free-fall sixty feet and enter a series of loopty-loops. But I wanted to believe, to have faith.
I felt a twinge of pain in my lower abdomen on Tuesday, but I tried to pretend that it wasn’t there. I woke up Wednesday morning in full-blown pain. Level 7. That’s where I land most of the time. Occasionally, I go up to an 8, or as low as a 6, but 7 has always been my lucky number. When I came home from work on Wednesday night, I peeled back the band-aid covering the open wound on my left breast, and light green fluid began pouring out – of three holes. If you’re new to my blog, I have been dealing with mastitis for two and a half years. Fourteen months ago I had surgery to remove an abscess (and several ducts), and the surgical wound refuses to close. Beneath that wound, there is a pocket of fluid that formed, and has now broke through the skin, creating two more holes. After draining all of the fluid I could, I noticed that the skin around the wounds was turning red – and that isn’t a good sign. I threw my hands in the air (literally), and shouted – or grunted, I’m not sure how it came out. What I wanted to do was stomp my feet and scream. I whispered, “I can’t do this anymore,” as though I had a choice. I bandaged up my wound and went into the kitchen. I found the white pharmacy bag on the counter – in the same place I had left it over a month ago. I pulled out the brown pill bottle, tossed two Prednisone’s in my mouth, and chugged a glass of water. I am tired of fighting. I am just tired.
Last night, I woke up at 3:25 am. Level 9. I tried laying on my back, then my other side, then I got up and sat on the couch. I paced the hall. I sat in the recliner. There was no comfort, no relief, no matter what I did. I laid there, in the darkness, and again I whispered, “I can’t do this anymore.” I whimpered. I cried. Then, I got up, took 1000 mg of acetaminophen, turned on a heating pad, and curled up with a book. I fell asleep about an hour later.
Tears are the silent language of grief.
Voltaire
Today, the tears just flowed. I sat down to work, and they came. I got in the car, and they came. I talked to my husband on the phone, and they came. Even now, as I am writing, they are pooling in the corners of my eyes. I am tired, battle-weary. I know that in eight hours, my children are going to be getting dressed and preparing for an amazing day at a local theme park with some of our best friends. I am going to be packing lunches, and sunblock, and making sure that I wear comfortable shoes for the long day ahead. And I know that I am going to have to take Tramadol to make it through the day. I am going to put on my best smile, ignore the pain, suppress the tears, and be the mom that they deserve. So tonight, I am going to sit here awhile longer, and allow the darkness that surrounds me to cover my sorrow. Tonight, I will grieve.

I love you and I am so sorry you have been living in so much pain for so long. I know you have your faith and I won’t pretend that I fully understand it. Healthy eating and regular exercise is just as important to your health. But sometimes you have to take the medication. I know you don’t want to take, if you don’t think your new doctor is right or you are not comfortable with him or her, then seek a second opinion and find a physician that you are comfortable with. You are in a never ending cycle of both physical and emotional pain. It may take trying multiple medications until you find one that works for you. Each persons response to any given medication can be different. This is coming to you from someone who has taken methotrexate for numerous years and have used prednisone many times over the years for flare ups. Methotrexate is not the first medication my Rheumatologist put me on and is not the only medication I take on a regular basis, but is one I have taken for years and it help prevent further damage to my joints and keeps inflammation in check. If you give a medication a few days & have a bad reaction to it, you have to tell the Dr right away that it’s not working of for you, but you have to give it a chance. You have to weigh to negatives against to positives and remember that all medications have negatives and weird side effects, but is the bad really worse than the good. I can’t believe you want to continue living in pain, so get aggresive and fight it, use whatever medication it takes to beat it back into submission. You are a stong woman & I know you can win this fight.
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Thanks Katy! I feel defeated, but I know I would be foolish to have the medicine available and not take it. I tried it my way, now I will try it the doctor’s way.
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